Wednesday, 22 February 2017
3rd Annual Information Law Research Seminar: Prof. Roger Brownsword 29 March 2pm
The Right to Know and the Right Not to Know Revisited
2.00-4.00pm 29 March Freeman Centre F22
Abstract: In the context of the availability of non-invasive prenatal testing (and the upcoming report by the Nuffield Council on Bioethics on this topic) as well as the systematic genotyping of UK Biobank’s participants, this paper considers the plausibility, basis, scope, and weight of the claim that participants and patients have a right to know as well as a right not to know the results of the genetic analysis undertaken.
Bio: Roger Brownsword holds professorial positions at King’s College London and Bournemouth University, and he is Honorary Professor in Law at Sheffield University. Until his retirement in 2010, he was founding Director of TELOS, an inter-disciplinary research centre at King’s College London that focuses on law, ethics, and technology. He was a member of the Nuffield Council on Bioethics from 2004–2010, he chaired the Ethics and Governance Council for UK Biobank from 2011-2015, he is a member of the UK National Screening Committee and, currently, he is a member of the Royal Society Working Party on Machine Learning. He has published more than a dozen books (most recently the Oxford Handbook on Law, Regulation and Technology [with Eloise Scotford and Karen Yeung]) and some 250 academic papers; he is a member of the editorial board of the Modern Law Review and (with Han Somsen) founding general editor of Law, Innovation and Technology. He was a member of the Law panel for RAE2008 and of the international Law panel for RAE2014 in Hong Kong.